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Celiac Disease: What you need to know

Posted 03.22.2006 by Dave
On Friday, November 25, I received this email from Norma B.:
With all this reference to diarrhea, I don't find any mention of gluten intolerance or Celiac Disease. My husband had it for months before it was diagnosed. He had spontaneous bouts of yellow, liquid, foul-smelling diarrhea, and no medication stops it -- only avoidance of wheat, rye, barley and oat flour. Many doctors don't know about Celiac Disease.
"Thanks," I wrote back to Norma. "That's a good point. Do you think either you or your husband would be interested in writing up a full report about the disease? That's the only way people will learn about it. PoopReport appreciates the humor in stories like these; but we also appreciate the gravity of the situation. What do you think? This would be a great way to raise awareness..."

Finally, a few weeks ago, write back she did.

Dear Dave,

My husband suffered from bouts of watery, yellow, foul-smelling diarrhea for months. There was no prescription pill that lessened it at all. The diarrhea would come on suddenly. We were seventy miles from home in Tucson, AZ, for George's appointment with a doctor. He had to go and I pulled into the parking lot of a restaurant. The restaurant was not open for customers yet, but there was a delivery man in the parking lot. I asked him if George could use the restroom and he replied that they would not let him in. At that time the yellow diarrhea ran down his legs, into his socks and shoes, and made a puddle on the ground. We went to the doctor's office and the girl told me where I could buy him a new pair of jeans, socks and underwear and let him clean up in their restroom. It was very embarrassing.

Then our family doctor referred him for a colonoscopy, which was negative. The doctor who performed the test mentioned celiac disease. That was the first inkling we had as to the cause of his diarrhea.

Numerous studies over the years show that Celiac Disease is much more prevalent than thought, and is often misdiagnosed. It is also referred to as "Celiac Sprue." It runs in families. It is disappointing to talk to medical doctors who have little knowledge of this condition. The University of Maryland has done some clinical trials suggesting you may be able to take a pill before ingesting gluten; however, this pill is not yet available.

I did a Google search and found much information about this condition. The only thing that stopped George's diarrhea was avoidance of flour: wheat, rye, oat and barley. Of course, malt flavoring comes from barley, and all of the cereals in the store contain malt flavoring, except Kellogg's Corn Pops and Puffed Rice.

George had been a chef and a baker, and giving up regular bread was difficult. He learned to make bread from rice flour, potato starch, xantham gum, etc. Bette Hagman's The Gluten-Free Gourmet is an excellent book. A Google search for Bette Hagman will reveal many more of her books.

Celiac.com gives a list of knowledgeable doctors recommended by celiacs. There are also Celiac Disease support groups in most states. They meet monthly and provide speakers, new recipes, tips on eating out, etc. Such a group helped my husband cope with this affliction.

George died in January 2005 from metastatic lung cancer, so I don't have to provide a special diet now.

Hope this helps.

I hope it does, too. Thanks, Norma.

Show some poop support, or make a poop retort.
Bunghole In the... (432) -- 03.22.2006

Celiac disease plays intestinal havoc. I have a friend who suffers from it. She's constantly reading product labels and has researched ingredient-derivation names so she won't suffer episodes from eating a product which contains gluten.

If a celiac sufferer feels inclined to bake other alternate flours not listed are those made from amaranth and quinoa.

Poop Shooter (598) -- 03.22.2006

Thanks for puttin up the post Dave. My condolences to Norma for the loss of her husband who suffered the problems. Another new colonic problem I had not heard of. Thanks!


_______
Regional POWER POOPING CHAMPION 1988-2006
Poop Shooter!

The Shit Volcano (3817) -- 03.22.2006

First off, I am very sorry for the loss of your husband. That sucks ass. But I think he would have been happy that you posted this article. It was very informative as I didn't know too much about the disease, other than the name.

I had a friend who developed this disease when he was about six years old. He spent his entire life allergic to everything, and his bowels wreaked havoc. At twenty years old he developed esophogeal cancer and committed suicide. I wonder if Celiac disease can lead to cancer, as we now have two reports of it.

This is why we need a new Poonurse! Anyone out there with medical experience want to tackle this job?

_______
Broccoli!

PooperGal (527) -- 03.22.2006

My condolences as well, Norma. It sounds like you were a wonderful source of support and comfort for your husband in his times of need.

The information is a good public service. I had heard of celiac disease, but did not realize that it was caused by cereal grains. I am going to research more to learn whether it is due to a genetic inability to process or absorb gluten, or whether it is an allergy to the substance. Though I don't know anyone with that condition, I do have a niece with diabetes, and diet is a huge part of the process of controling her condition.

PooperGal
"Searching for the Origin of the Feces"

The Dumpster (2507) -- 03.22.2006

This is not exactly the kind of post which inspires one to "poop humor." Norma, if you are reading this, sorry about George's death. Your vivid descriptions of "watery, yellow, foul-smelling diarrhea" do encourage me that this tragedy hasn't totally deprived you of your sense of humor--nor should it.

I hope you will consider joining PR as a regular member and see if what we "doo" here doesn't bring a smile to your life!

_______
"Say, has anybody seen my sweet Gypsy Rose Volcano?"

Celiac Pooer (not verified) -- 12.03.2007

Recently diagnosed with Celiac myself. The yellow poo is really scary. The worst part is sitting on the toliet begging for death or the end of that bought of poo!!! Yes, whoever asked, Celiac is highly corelated with cancers. Hooray for us. ;)

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